Monday, April 28, 2014

№ 814 EB AWARENESS



From the 28th of April until the 5th of May the EB Awareness event will be open. Until some days ago I never heard of Epidermolysis Bullosa , shortened EB it  is an inherited connective tissue disease causing blisters  in the skin and the skin pealing of on the slightest tough or friction.
 "Butterfly Children" is a term often used to describe younger patients (because the skin is said to be as fragile as a butterfly’s wings  , "Cotton Wool Babies,", or (in South America) as "Crystal Skin Children".
For the children who are suffering from this condition it is a daily struggle against pain and it affects the whole family who sees their loved one in such uphill battle. So this event is to raise awareness and to have  fund raising to help out the Debra Foundation. You can donate at the shopping event but on the Debra website as well.
  LaLuna Xue from Punky Chicks soon to be known as * Purete * made 6 exclusive   butterfly dresses in theme of the event and 75% goo's to the Debra Foundation.
Burdeyna Islands  donated the land for the event lets do some serious shopping and helping all those who are effected by EB.
Be aware and have fun while you shop until you drop.
                                      EB Awareness Event 



Hair MINA @ TDR FUSION Eva 
Dresses  Punky Chicks  @  EB Awareness Tube Dress 3 & Satin Dress 1
Necklace , Bracelets , Rings & Earrings  Izzie's  *GROUP GIFT* 
Shoes Eudora  Huxley Stilettos
For Slink High Feet
Poses  with Butterflies Yoga Poses  @ Pose fair 2014 Butterflies




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